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Original: 2/3/2005 7:05 PM
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Thursday, February 03, 2005

 

The enhanced MRI was certainly interesting at one point. They have it timed perfectly or they can see the contrast coming, one or the other. He told me "you are going to feel the liquid coming in your neck, do not cough, swallow or move your head".  He wasn't kidding, my first reaction as I felt it was to cough. It had a metalic taste for a few seconds and I could feel it spread across my lower jaw right under my lip. Didn't hurt, I could just feel it.

Today I noticed a cost on our copy of the receipt. $1,180 if I recall. Add that to yesterday's $900 something for the soft tissue and the same amount for the TMJ. I wonder how much of that Medicare is going to cover and how much Tri Care for Life will pay and what if any are we left with.

After lunch I was sitting in the facial dentist's office. I refused to sit in the exam chair for a long wait for him, I stayed in the waiting room with hub. I knew this visit was going to make him mad and indeed it did.

The very first time I ever saw him I carried a calendar to help me remember days and length of the pain as it is intermittent and my days all run together. He showed no interest in it so I quit keeping the calendar. He asks me the same questions and gets about the same answers.

Today was a bit different. He was ticked off that I refuse to increase the Neurontin and refuse to take the addicting drug Klonipin (sp?) that he prescribed, and that I would listen to my primary doctor and the ENT doctor tell me that I was at the limit for the Neurontin. He shrugged off the fact the ENT thinks my loss of hearing may be tied to it.

Nor was he happy that I was being treated by others for this when it is "his job" to take care of the neuralgia. A catch all name for sure. I have searched the net high and low and I don't fit the neuralgia's listed. He feels the MRI was a waste of time and it isn't going to show a thing. 

He may be right, but he ignored the fact that the radiologist saw something that made him request enhancement.

He does want me to let him know if they find anything, but he see's no reason to see me again if someone else is looking into this. That makes two of us. As it is I almost cancelled today's appointment because I think it is a waste of time. I can just imagine what he wrote on my chart.

In his opinion no ENT has any experience in this and if anyone else is involved it should be a neurologist or neurosurgeon. I told him as a Medicare patient, bottom of the barrel, I have been on a neurologist waiting list long before I saw him.

I also told him that as a patient I feel I am being put in the middle of varying opinions and before long I will just not go to anyone or do anything but continue to have intermittent periods of pain.  Guess I need to make notes on a calendar again and on autopsy maybe they can find an answer some day.

Can I start this decade over?

 Posted 2/3/2005 7:05 PM - 13 views - 9 comments

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9 Comments

Visit Nanny's Xanga Site!
Doctors are so ego bound for the most part.  They cannot be wrong but they so often are.  My stepson is a neurologist at the University of Virginia and is the head of the Epilepsy department.  Whenever Knight or I have tests done we make sure he gets the reports immediately.  It is amazing how much we learn that we otherwise would never be told.  Klonopin is an anti-anxiety pill I believe.  It should be used with caution.  You are being wise. Good luck...hell to get old! 
Posted 2/3/2005 8:10 PM by Nanny Xanga True Member Xanga Premium Member - reply

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I agree with Nanny.    Too many Drs. seem to think we are all idiots, and should take their word as Gospel.  I am fortunate to have a considerate Dr., who listens to me and my ideas.  She is a younger woman, and maybe that has something to do with it.

I sure hope that the MRI sees something they can treat, so you can get rid of that pain!

Posted 2/3/2005 9:33 PM by mimiwi Xanga True Member Xanga Lifetime Member - reply

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It sounds like your doctor should meet Little E's former doctor. I don't blame you for not going back...fire the inconsiderate jerk. Go with someone you trust and can talk to.
He must not have taken the "bedside manner" class. :)
Posted 2/3/2005 9:46 PM by symbolreader Xanga True Member Xanga Lifetime Member - reply

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I am sorry. Navigating the whole medical thing is really difficult. I had that metal tasting MRI once, wierd, isn't it?
Posted 2/3/2005 10:21 PM by harasnahgem - reply

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Funny that many doctors ask questions but just do not LISTEN to the patient and if they do, just grunt.

Hope things go better Sis.

Posted 2/4/2005 1:38 PM by riddiger Xanga True Member Xanga Lifetime Member - reply

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My sister takes Neurontin and has a terrible time with it.  :(

My doctor just overdosed me on Protopic, yeesh.  I was having awful dizzy spells.  Luckily I knew well enough to take myself down to applying it once a day... I feel much better now, and the eczema is still at bay.

Sorry you had this experience.  *hugs*

And thanks for stopping by my Xanga!

Posted 2/4/2005 9:38 PM by Formia - reply

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My husband was prescribed neurontin for manic depression and had a bad reaction to it. He quit taking it. He takes his blood pressure pills and had them changed recently too because the ones he was using was giving him headaches. It seems like if you have something that is not obvious, it is difficult to get the doctors to really study it. They want a quick fix like everyone else today!  Good luck.
Posted 2/5/2005 6:39 PM by pinkjag Xanga Premium Member - reply

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I'm so sorry that you're having so much trouble with your doctor.  My uncle once told his doctor that he was fired!  I "fired" my doctor this past December, and went to another one in Jan.  I really like my new doctor.  I hope that you can find someone who'll listen to you, and can find out the reason for your pain.
Posted 2/5/2005 7:15 PM by Susan49 - reply

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Between you and LE, the medical profession is one that should be avoided instead of sought after. Great gravy, Bonnie, when you know more than your doctor, what in the world are you paying him for??? I hope you find something soon and remember, there is always acupuncture. 
Posted 2/5/2005 8:02 PM by raguslil - reply


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