O.k. this one will be short but good. I spoke with one of the nurses at Cincinnati last week. She let us know that there were no surprises in the biopsis they took......Alleluhia! Molly does not have reflux other than what you and I have......another Amen! That means no stomach surgeries! Yahoo! We just need to take care of the things we spoke about while we were there. Those being: 1. adnoids/tonsils removed, 2. off of oxygen or a plan to be 3. working with the Cin. feeding team to stop Molly's spitting up. After those three are either done or in the process we are to go back to Cincinnati for another scope by Dr. Cotton. After he sees what her airway looks like, he can tell us more of a time-line we are going to follow. Molly is a candidate for the Stages Procedure. That means we would go get her airway reconstructed by grafting in cartlidge from her ribs to increase the airway size. They would put in a stint at that time and leave it there for an undetermined amount of time. It could be 2 weeks or 2 months. Once they see that everything has healed, they will remove the stint and begin a time of capping her trach. This teaches her to use her mouth and nose to breath instead of her trach. It would have to be scary to have the one place you are used to breathing covered up and now you have to learn all over again. Once she is comfortable and the doctors are comfortable they will remove her trach and close her stoma. What a day that will be! She will have a voice of some sort! =) She has been desperately trying to use her mouth to communicate with us! It is really cute.
I hope this helps all of you pray a little prayer for Molly. She is growing up so fast! I will put more pics on tonight! =)
Comments (2)
Congrats on the GREAT news! We have been wondering. You've got a STRONG little girl on your hands....she's going to do just fine! Yay Molly!
Take care and have a great weekend! Look forward to seeing her pictures....Leisa, Keenan & BaileyAmen is right! How wonderful!! ((HUGS)) to all 4
of you!